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Vol 23 No 10 Oct/Nov 2018

Book of the Month

Cover of Civil Fraud: Law, Practice and Procedure

Civil Fraud: Law, Practice and Procedure

Edited by: Thomas Grant, David Mumford
Price: £219.00

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Genetics, Disability, and the Law: Towards an EU Legal Framework


ISBN13: 9781107566804
To be Published: December 2018
Publisher: Cambridge University Press
Country of Publication: UK
Format: Paperback (Hardback in 2017)
Price: £23.99
Hardback edition , ISBN13 9781107127579



While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases. However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights. An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.

  • Presents a practical consideration of an EU-level legislative response to controlling the use and misuse of genetic information, appealing to those involved in the regulation of this field
  • Takes a human rights and disability approach to consider the regulation of genetic information, which will interest scholars and policymakers from a variety of disciplines, in particular because it considers the intersection of disability and genetics
  • Considers normative and non-normative attitudes to the regulation of genetic information, giving readers a new and varied insight

Subjects:
Medical Law
Contents:
1. Introduction
Part I. New Science and Technology and the Ethical and Legal Issues Arising:
2. Background: advancing genetic science
3. Ethical implications, legal issues and public policy concerns of advancing genetic technology
4. A disability framework - the interface of the social model of disability with the evolution of genetic science
Part II. The Imperative for Regulation and the Choice of Regulator Theory and Frameworks:
5. Mode of regulation and choice of regulatory frameworks in legal theory
6. Framings from international human rights law
7. Evolving comparative law benchmarks
Part III. The European Perspective:
8. Human rights norms in the Council of Europe and the regulation of genetic information
9. The European Union and protection of genetic information
Part IV. Building the Case for a European Union Regulatory Framework:
10. National level approaches - a patchwork of protections
11. A case for European Union level action
12. Conclusion - where next for the EU?

Series: Cambridge Disability Law and Policy Series

The Right to Inclusive Education in International Human Rights Law ISBN 9781107121188
To be published March 2019
Cambridge University Press
£95.00
Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled ISBN 9781107545069
To be published December 2018
Cambridge University Press
£25.99
Genetics, Disability, and the Law: Towards an EU Legal Framework ISBN 9781107127579
Published September 2017
Cambridge University Press
£85.00
Genetics, Disability, and the Law: Towards an EU Legal Framework (eBook) ISBN 9781108506298
Published September 2017
Cambridge University Press
£68.00 + £13.60 VAT
(ePub)
Buy
£68.00 + £13.60 VAT
(ePub)
Buy
Disability and Community Living Policies ISBN 9781107140714
Published July 2017
Cambridge University Press
£85.00
Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled ISBN 9781107119000
Published April 2017
Cambridge University Press
£75.00
Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled (eBook) ISBN 9781108206525
Published April 2017
Cambridge University Press
£60.00 + £12.00 VAT
(ePub)
Buy
Land Use Law and Disability: Planning and Zoning for Accessible Communities ISBN 9781316614143
Published June 2016
Cambridge University Press
£21.99
Disability and the Good Human Life ISBN 9781107545830
Published July 2015
Cambridge University Press
£24.99
Disability and Information Technology: A Comparative Study in Media Regulation ISBN 9781107502895
Published March 2015
Cambridge University Press
£22.99
Family Policy and Disability ISBN 9781107049178
Published January 2015
Cambridge University Press
£67.00
People with Disabilities: Sidelined or Mainstreamed? ISBN 9781107502826
Published January 2015
Cambridge University Press
£23.99
Land Use Law and Disability: Planning and Zoning for Accessible Communities ISBN 9780521193931
Published December 2014
Cambridge University Press
£67.00
Social Inclusion of People with Disabilities: National and International Perspectives ISBN 9781107415294
Published June 2014
Cambridge University Press
£25.99
Perfecting Pregnancy: Law, Disability, and the Future of Reproduction ISBN 9780521758390
Published January 2014
Cambridge University Press
£25.99
Making Rights a Reality?: Disability Rights Activists and Legal Mobilization ISBN 9781107616400
Published January 2014
Cambridge University Press
£23.99
People With Disabilities: Sidelined or Mainstreamed? ISBN 9781107000476
Published July 2013
Cambridge University Press
£62.00
Bioethics and Disability: Toward a Disability-Conscious Bioethics ISBN 9781107610651
Published July 2013
Cambridge University Press
£26.99
Disability and Information Technology: A Comparative Study in Media Regulation ISBN 9780521191616
Published April 2013
Cambridge University Press
£72.00
£93.00
Social Inclusion of People with Disabilities: National and International Perspectives ISBN 9781107014626
Published December 2012
Cambridge University Press
£72.00
Perfecting Pregnancy: Law, Disability, and the Future of Reproduction ISBN 9780521765206
Published June 2012
Cambridge University Press
£72.00
£72.00
Bioethics and Disability: Toward a Disability-Conscious Bioethics ISBN 9780521110303
Published June 2011
Cambridge University Press
£77.00
Making Rights a Reality?: Disability Rights Activists and Legal Mobilization ISBN 9781107000872
Published March 2011
Cambridge University Press
£67.00
When is Separate Unequal?: A Disability Perspective ISBN 9780521713818
Published January 2009
Cambridge University Press
£24.99