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Children's Rights in Biomedicine: Protecting Children from Scientific Risks and Uncertainty

Edited by: Santa Slokenberga, Jameson Garland, Anna Singer

ISBN13: 9789004710085
Published: October 2026
Publisher: Brill Nijhoff
Country of Publication: Netherlands
Format: Hardback
Price: Price on Application





This book provides a comprehensive, cross-disciplinary analysis of children’s rights across various biomedical contexts. The book's twenty-two chapters–authored by experts across Europe and the United States–examine diverse biomedical practices that affect children's human rights. The chapters scrutinise biomedical interventions on paediatric patients throughout childhood. The scholarly work covers interventions early in life and throughout their lifespan, including those children who face death before they meet the threshold for adulthood.

This book is the outgrowth of more than a decade of research on biomedical interventions that pose significant risks to children’s rights. It was inspired by the research of editors Slokenberga and Garland, together with their colleague Kavot Zillén’s work on The Rights of Children in Biomedicine for the Council of Europe.

Subjects:
Children, Medical Law and Bioethics
Contents:
List of Tables
Introduction: Challenges in Protecting Children and Adolescents in Europe from Scientific Risk and Uncertainty in Biomedical Interventions
Jameson Garland, Santa Slokenberga and Anna Singer
PART 1. Genetics at the Beginning of Life
1. Fertility Innovations and Children’s Interests in Institutional Design
June Carbone
2. Genetic Analysis at a Pre-birth Stage
Pin Lean Lau

PART 2. Public Health and the Individual
3. Minors’ Access to Abortion in Europe: A Children’s Rights Perspective
Katharina Ó Cathaoir, Annika Frida Petersen and Janne Rothmar Herrmann
4. Beyond Prevention: Biomedical Interventions, Scientific Progress, and the Rights of the Child in Obesity Management
Katharina Ó Cathaoir
5. The Ability of Human Rights Standards to Protect Children Diagnosed with Psychiatric Disorders or Severe Mental Health Needs
Ralph Sandland
6. Children, Human Rights and Vaccination in the Pursuit of the Highest Attainable Standard of Health in Europe
Clayton Ó Néill

PART 3. The Rights of LGBTIQ+ and Other Sexual and Gender Minority Children
7. Protecting the Rights of LGBTIQ+ Children and Adolescents: From Conversion Therapies to Microaggressions
Jameson Garland
8. Psychological and Medical Treatment of Children with Gender Incongruence: A Professional, Ethical and Child Rights Approach
 Reidar Schei Jessen, Kirsten Sandberg and Anniken Sørlie
9. The Path Finally Taken: Protecting Persons with Variations of Sex Characteristics and the Right to the Care That They Choose
Jameson Garland

PART 4. Clinical Research and New Therapies
10. Children in Clinical Trials: On the Balance between Safeguarding Children and the Need for Scientific Progress to Overcome a Therapeutic Gap
Jakob Wested and Santa Slokenberga
11. Children and Innovative Genetic Therapy in Europe: Human Rights Considerations
Santa Slokenberga, Paraskevi Papadopoulou and Olga Tzortzatou-Nanopoulou

PART 5. Transplantation
12. Children as Organ Transplant Recipients
Audrey Lebret
13. Living Donation by Children
Kristof Van Assche
14. Children as Potential Deceased Organ Donors
Audrey Lebret

PART 6. Interventions at or Near the End of Life
15. Palliative Care for Children at the End of Life: An International Children’s Rights Approach
Mirjam Sombroek van Doorm
16. Withdrawal of Treatment for Children
Aart Hendriks
17. Children’s Rights and Euthanasia in Europe
Stevie Martin and Claire Fenton-Glynn
18. Reconciling Law and Medicine to Protect Children in Biomedical Settings
Santa Slokenberga, Jameson Garland and Anna Singer

Index