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Vol 22 No 7 July/August 2017

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The Data Protective Directive and Medical Research Across Europe

ISBN13: 9780754623670
ISBN: 075462367X
Published: March 2005
Publisher: Ashgate Publishing Ltd
Country of Publication: UK
Format: Hardback
Price: £95.00

Despatched in 5 to 7 days.

The Data Protection and Medical Research in Europe: PRIVIREAL series focuses on the 'Privacy in Research Ethics and Law' EC-funded project examining the implementation of Directive 95/46/EC on data protection in relation to medical research and the role of ethics committees in European countries.

The series consists of five separate volumes following the complete development of the PRIVIREAL project. This volume relates to the first stage of the project regarding the implementation of the Data Protection Directive, in particular in the area of medical research. It contains an introduction and overview of this topic, keynote papers addressing specific questions on the subject, and a report on both the general implementation of the Directive and the implementation in relation to medical research in 26 European countries.

The book will be invaluable for those people with an interest in data protection, medical research and their implications for each other. It lays open the actual situation across Europe, including both New Member States and Newly Associated Member States.

Introduction and Keynote Papers: Introduction, Deryck Beyleveld, Segolene Rouille-Mirza, David Townend and Jessica Wright; An overview of Directive 95/46/EC in relation to medical research, Deryck Beyleveld; The concept of privacy: an analysis of the EU directive on the protection of personal data, Mette Hartlev; Anonymization and pseudonymization: the legal framework at an European level, Carlos Maria Romeo-Casabona; The scope for exemptions for medical research, Herman Nys; The duty to provide information to the data subject: articles 10 and 11 of Directive 95/46/EC, Deryck Beyleveld; Overriding data subjects' rights in the public interest, Stefano Rodota and David Townend; Genetic information and the data protection directive of the European union, Lasse Lehtonen. Report Framework and Comparative Studies: EU, Norway and the NAS law report framework, Deryck Beyleveld and David Townend; Comparative study on the implementation and effect of Directive 95/46/EC on data protection in Europe: general standards, Segolene Rouille-Mirza and Jessica Wright; Comparative study on the implementation and effect of Directive 95/46/EC on data protection in Europe: medical research, Segolene Rouille-Mirza and Jessica Wright; Index.